Research

At MacPac Foundation, one of our core beliefs is that the future of HBSL relies on the dedication and expertise of the scientific researchers working to better understand HBSL and develop a cure.

Dr. Marjo van der Knaap, Dr. Adeline Vanderver, and Dr. Ryan Taft have been at the forefront of research for HBSL. Every donation that comes to the MacPac Foundation will support the extensive research being done by their teams.